If there is one thing I have learned about being a special needs parent. It’s CHANGE. Be prepared for it. No matter how hard you try to avoid it. It’s gonna happen. I went to one elementary school from K-8th grade. I liked it. That’s what I always wanted for my boys, it’s how I grew friendships and established relationships. Having grown up that way, I feel that it is very important. I want my kids to go to high school with their elementary school friends and make new ones along the way. Though, I have come to learn and accept that’s not the reality of our lives. To cater to Noah, we have been through 7 schools and we’re only in 4th grade. I know, you’re right, how could we go through that many schools. Don’t you know how bad that is, not just for your child with ASD but for your neurotypical kiddo as well?? Yes, I do. And you’re absolutely right. I promise it was all with good intentions. We were just trying to make it right for Noah, because we knew Jeremiah could adapt. I’ve learned that having a child on the spectrum or a child with any special needs, that’s just your reality. You need to fight and make it right for them, because in the long run who’s gonna do it for you. That’s why there’s been so much change.
**Update** Before you read further, I just wanted to add that our days in the Wilson home have gotten SO much better! We have spoken to some amazing people at Seeds for Autism and SARCC. And are planning on joining some support groups in the area. The help we have gotten, so far, has done some pretty awesome things, and we are very hopeful for what the future brings. -Tiff
Nick here … As most of you know we have had a hard go at it lately. I just wanted to state that my wife and child are my world. Having said that, there are times I can see why the divorce rate is so high amongst parents with special needs children. Most parents will have different parenting styles and this is typically not an issue with your average child. But this also rears it’s ugly head when you have a child, who in our case, has Autism and can have some pretty exhausting tantrums.
Morning, friends! As you know, we’ve had some struggles in our house lately. Not gonna lie, Nick and I can be pretty stubborn and I think we both got to the point where we needed help. Rather than just constantly researching, we needed to hear it from peers who have experienced this first hand. So we got in contact with some incredibly knowledgeable people from Seeds for Autism and SARRC (Southwest Autism Research and Resource Center) and spent close to an hour on the phone with each place just talking about what we are going through and having someone on the other end who has experienced it as well.
Friends. About last night. It was hard. Seriously, astronomically difficult. I know what you’re thinking, “really, Tiff, astronomically?? You may be going a bit overboard here.” Okay, you’re probably right, but my goodness. When we first decided to write this blog, we thought why not do a lifestyle one! You know, have some family stories, recipes, DIY projects, travel, etc. I promise at some point those will all make its way onto the blog. Right now, though, Autism. This is something, in the most recent months, that has consumed our lives. Now, hear me out, I don’t mean “consumed” in a bad way. This comes with all sorts of emotions.
I bet you’re wondering what’s going on in this picture? Well let me explain. It was a beautiful fall morning. Noah was 3, so circa 2010. This was his very first time in a team sport and his very first game. We chose soccer because Noah LOVED to run, in fact he still does. For the first maybe 15 minutes he did great! Was super into it, then comes after the little halftime. This takes us back to the picture, his coach was calling him back in with this whole team. “Hey, Noah! Let’s play!” Noah, “NOOOOOOOOOOOO!!” I literally could not have planned out this picture any more perfect! It is and will always be one of my favorites!
Noah has always had sensory issues with his mouth. Let’s just say going to the Dentist has been one of our hardest struggles. Going to the dentist with Noah has always been a two man job. He didn’t want to have anything to with it, and it was basically the end of the world when it was that time of year. This also came to the daily task of brushing his teeth. It was a daily fight and we had to figure a different route.
For the many of you who may or may not know. This is Noah. He is our happy, loving, sweet, stubborn, talented 10 year old ( I still can’t believe we have 10 year old!). Noah has ASD (Autism Spectrum Disorder), he was recently diagnosed just before his 10th birthday. I have never felt more blessed. Yes, blessed. Because the road getting here was not fun, and that’s an understatement. So we are blessed (and I will say it over and over again) that someone finally listened to our concerns. I will be forever thankful that Noah’s third grade teacher crossed our path.